Details

Nursing Care of Children and Young People with Long-Term Conditions

2. Aufl.

von: Mandy Brimble, Peter McNee
55,99 €
Verlag:	Wiley-Blackwell
Format:	EPUB
Veröffentl.:	29.12.2020
ISBN/EAN:	9781119653165
Sprache:	englisch
Anzahl Seiten:	304

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Titelbeschreibung

The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: <ul> <li>Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice</li> <li>Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions</li> <li>Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners</li> <li>Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness</li> <li>Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services</li> </ul> Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.

Inhaltsverzeichnis

Contributors xiii Introduction xvii 1 The Definition and Aetiology of Long-Term Conditions 1 Siân Bill and Angharad Dwynwen Barklam Introduction 1 Aim of the chapter 1 Intended learning outcomes 2 Genetic knowledge 2 The need for genetic knowledge 3 The ethical, legal and social implications in the screening, testing and recording of genetic information 4 The determinants of genetic disease 5 Chromosomal abnormalities 6 Chromosomal nomenclature 8 Single gene (Mendelian) disorders 8 Autosomal recessive inheritance 9 Autosomal dominant inheritance 11 X-linked recessive inheritance 11 X-linked dominant inheritance 12 Inherited variations 12 Antenatal period 15 The neonatal period 17 Post-neonatal period 19 Adolescent period 22 Conclusion 23 Useful websites 24 References 25 2 Context of Care and Service Delivery 31 Peter McNee Introduction 31 Aim of the chapter 31 Intended learning outcomes 31 Context of change 32 Political influences 32 Economic influences 33 Social influences 34 New models of service delivery 35 Modernising workforce 36 Increasing patient expectations and engagement 38 Locally based commissioning 39 Staffing implications 40 Staff education and competence 40 Meeting parental needs 42 Innovative practices – new roles 44 Telemedicine 45 Key worker role 45 Mental health issues 47 Multiagency working 47 Multidisciplinary team (MDT)/Interprofessional working (IPW) 48 Nursing implications, challenges and opportunities in MDT/IPW working 49 Conclusion 49 Acknowledgement 50 Useful websites 50 References 50 3 Impact upon the Child and Parents 55 Dawn Daniel and Mandy Brimble Introduction 55 Aim of the chapter 55 Intended learning outcomes 56 Theories of grief, loss and change 56 Initial impact 60 Type 1 diabetes 60 Impact on parents 61 Impact on the child/young person with a long-term illness 62 Continuing care 65 Coping, adaptation and change 66 Theories of stress and coping 67 Coping strategies 68 Normalisation 69 Conclusion 74 Acknowledgement 75 Useful websites 75 References 75 4 Impact On Siblings 81 Amie Hodges, Daniel Kelly, and Julia Tod Introduction 81 Aim of the chapter 81 Intended learning outcomes 82 The sibling relationship 82 Sibling identity 83 Sibling boundaries 83 Sibling interaction 84 Parental influence on the sibling relationship 85 The impact of a long-term condition on the sibling 86 A new diagnosis 86 Changes in family life for the sibling 87 Emotional labour 88 Sibling empathy and maturity 88 Siblings as carers 89 Young carers and carers’ assessment 90 Recognising the unmet needs of siblings 91 Conclusion 93 Useful websites 93 References 94 5 A Holistic Approach to Meeting Physical, Social and Psychological Needs 97 Amie Hodges and Julia Tod Introduction 97 Aim of the chapter 97 Intended learning outcomes 98 Prevalence of eczema 98 Nursing considerations 99 Presentation of eczema 100 Treatment of eczema with emollients 101 Topical emollients 101 Safety 102 Effects of the itch scratch cycle 102 Family stress and coping 103 Assessment and immediate intervention 105 Current care management plan 106 Wet wraps 106 Topical steroids 107 Pain assessment 107 Antihistamines 109 Play and distraction 109 Bullying 110 Spirituality 112 Traditional complementary and alternative medicine 114 Health promotion 115 Conclusion 116 Useful websites 116 Recommended reading 117 References 117 6 Empowering Children, Young People and their Families 121 Mandy Brimble Introduction 121 Aim of the chapter 121 Intended learning outcomes 122 Health promotion 122 Empowerment 125 Approaches to health promotion 126 Parental smoking 129 Obesity 131 Non‐compliance 135 Steroids 135 Restrictive physical interventions and therapeutic holding 136 Conclusion 139 Useful websites 140 References 140 7 Ethical Issues 145 Peter McNee Introduction 145 Aim of the chapter 145 Intended learning outcomes 146 Why study ethics? 146 A definition of ethics 146 Introduction to ethical theories 147 Theory of consequentialism 147 Utilitarianism 148 Act utilitarianism 148 Rule utilitarianism 148 Theory of deontology 151 Ethical principles 154 Principle of autonomy 155 Ethical principle of beneficence 157 Issues 158 Ethical principle of non‐maleficence 159 Ethical principle of justice 161 A nursing ethic 162 Definition of an ethical dilemma 163 Ethical decision-making 164 A suggested model for ethics in practice/decision-making 166 Conclusion 167 Acknowledgement 167 Useful websites 168 Recommended reading 168 References 168 8 Children and Young People’s Continuing Care 171 Melda Price and Sian Thomas Introduction 171 Aim of the chapter 172 Intended learning outcomes 172 Continuing care needs and integrated children services 172 Transition to home care 177 Blended diets 179 Children and young people’s continuing care 180 Identifying an appropriate care package 181 Key worker role/care coordinator 182 Community children’s nursing services 182 Provision of equipment for home care 184 Carers’ assessments 185 The need for respite or short break provision 186 Home adaptations 188 Education and support at school 188 Support for families 189 Conclusion 189 Useful websites 190 References 190 9 Acute Emergencies 193 Martina Nathan, Peter McNee, and Jane Davies Introduction 193 Aim of the chapter 193 Intended learning outcomes 193 Acute emergencies 194 Aetiology 196 Environmental factors 196 Pathophysiology 197 Presentation 197 Prognosis 198 Treatment 200 Administration of chemotherapy 201 Central venous access devices 202 Sepsis 205 Children’s critical care 206 Family-focused care 207 Multidisciplinary working across different organisations 208 Conclusion 209 Useful websites 210 References 210 10 Adolescence 213 Siân Bill and Taryn Eccleston Introduction 213 Aim of the chapter 213 Intended learning outcomes 214 Existing knowledge 214 Why nurses need knowledge of adolescence 214 Brief overview of adolescent development 215 Understanding long-term conditions from a young person’s perspective 216 Chronic kidney disease 217 Communicating with young people 220 Communication issues for Thomas 221 Peer groups 221 The impact of having a long-term condition on growth and development 224 Delayed growth and puberty 224 Inconsistencies between physical and psychological development 225 Body image and self-esteem 225 Compliance and non-compliance, concordance and co-production 227 The social aspects of having a long-term condition 228 Young people, long-term conditions and school 229 Bullying 230 The hospitalised adolescent 231 Issues for young people in hospital 232 Specialised adolescent units 234 Service delivery and adolescent health 235 Promoting excellence 236 The role of the nurse 236 Conclusion 237 Acknowledgement 237 Useful websites 238 Recommended reading 238 References 238 11 Transitional Care 243 Siân Bill and Amie Hodges Introduction 243 Aim of the chapter 243 Intended learning outcomes 243 Overview of cystic fibrosis 244 Further complications 246 Genotype 246 Management 247 Adolescents with a long-term condition 247 Transitional care 248 The philosophy of transitional care 248 Models of transition 248 Issues regarding transition for adolescents 250 Gaining autonomy 252 Managing a long-term condition 252 Support and decision-making 252 The role of the nurse 254 Promoting the paradigm shift 257 The principles of successful transitional care 258 Conclusion 262 Useful websites 262 Recommended reading 262 References 263 Index 267

Autorenportrait

MANDY BRIMBLE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. She has worked as a Children's Nurse in general medicine and day surgery, and as the research and education lead in a children's hospice. PETER MCNEE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. His main areas of teaching include the acquisition of clinical skills, paediatric critical care, and acute clinical care.

Back cover copy

The second edition of Nursing Care of Children and Young People with Long-Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: <ul> <li>Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice</li> <li>Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions</li> <li>Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners</li> <li>Examines both classic and contemporary theories of grief, loss, coping, and adaptation</li> <li>Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness</li> <li>Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services</li> </ul> Nursing Care of Children and Young People with Long-Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.