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<p>Foreword viii</p> <p>Preface x</p> <p>Notes on Authors xiii</p> <p>Notes on Contributors xiv</p> <p>Acknowledgments xxv</p> <p>Introduction 1</p> <p><b>Section I Background 15</b></p> <p>1 Treatment Engagement and Adherence: A Review of the Literature 17<br /><i>Christiana O. Oshotse, Hayden Barry Bosworth, and Leah L. Zullig</i></p> <p>2 What Do Patients Want? Patient Satisfaction and Treatment Engagement 33<br /><i>Ann E. Webb and Robin E. Gearing</i></p> <p>3 Values‐based Practice and Patient Engagement: Linking Science with People 58<br /><i>Bill (K.W.M.) Fulford</i></p> <p>4 Informed Consent and the Law: From Patient Compliance to Patient Engagement? 75<br /><i>Richard Huxtable</i></p> <p>5 Assessing, Measuring, and Monitoring Treatment Engagement 92<br /><i>Donald E. Morisky and Chia‐Hsin Emily Cheng</i></p> <p><b>Section II Understanding Treatment Engagement 109</b></p> <p>6 Addressing the Challenges of Neurocognitive Impairment (NCI) on Treatment Engagement 111<br /><i>Roman Shrestha, Pramila Karki, and Michael Copenhaver</i></p> <p>7 Self‐determination Theory and Autonomy Support to Change Healthcare Behavior 141<br /><i>Martin S. Hagger and Cleo Protogerou</i></p> <p>8 Attachment Theory, the Therapeutic Alliance, and Treatment Engagement 159<br /><i>Katherine Berry and Adam Danquah</i></p> <p>9 Clinical Case Formulation of Suboptimal Engagement 172<br /><i>Lawrence Jones and Sunita Guha</i></p> <p>10 The Contribution of Beliefs to Treatment Engagement 188<br /><i>Vivian Auyeung, Lyndsay D. Hughes, and John A. Weinman</i></p> <p><b>Section III Practical Approaches to Enhance Engagement 203</b></p> <p>11 Medication and Treatment Beliefs as Determinants of Treatment Engagement 205<br /><i>Rob Horne</i></p> <p>12 Cognitive Behavioral and eHealth Approaches to Promote Engagement in Treatment 223<br /><i>M. Bryant Howren, Anne I. Roche, and Alan J. Christensen</i></p> <p>13 Enhancing Treatment Engagement Through Motivational Interviewing 243<br /><i>Stanley R. Steindl and Jason P. Connor</i></p> <p>14 Positive Approaches to Promote and Support Changes in Health Behavior 259<br /><i>Emily G. Lattie and Anne Cohen</i></p> <p>15 Communication Skills to Engage Patients in Treatment 274<br /><i>Mollie A. Ruben, Danielle Blanch‐Hartigan, and Judith A. Hall</i></p> <p>16 Understanding Some Psychodynamic Factors Involved in Suboptimal Engagement 297<br /><i>Geoffrey P. Taylor and Deborah L. Cabaniss</i></p> <p>17 Enhancing Wellbeing and Motivation for Staff Working with Patients Who Have Inconsistent or Challenging Engagement in Services 313<br /><i>Alex Lord</i></p> <p><b>Section IV Treatment Engagement in Specific Client Groups 335</b></p> <p>18 Engaging Patients from Diverse Backgrounds in Healthcare Treatment 337<br /><i>Aswita Tan‐McGrory, Andrea O. Madu, Karey S. Kenst, and Joseph R. Betancourt</i></p> <p>19 Enhancing Treatment Adherence in Young People with Chronic Diseases 354<br /><i>Michael A. Rapoff and Ali Calkins‐Smith</i></p> <p>20 Enhancing Treatment Engagement in Older Adults 365<br /><i>Jo Anne Sirey and Patricia Marino</i></p> <p>21 Treatment Engagement and People with Intellectual Disability 381<br /><i>Roger J. Stancliffe, Seeta Durvasula, Nathan J. Wilson, and Peter Lewis</i></p> <p>22 Promoting and Maintaining Engagement in Substance Abuse Treatment 399<br /><i>Nikolaj Kunøe</i></p> <p>23 Working with People with Mental Health Difficulties to Improve Adherence to Medication 430<br /><i>Thomas R.E. Barnes and Peter M. Haddad</i></p> <p>24 Engaging Socially Excluded Individuals and Communities in Healthcare 455<br /><i>Jed Boardman and David Morris</i></p> <p>25 Understanding and Overcoming Barriers to Treatment Engagement in Lower‐income Countries 477<br /><i>Andrew L. Ellner, Jessica L. Alpert, Chris Desmond, and Ashwin Vasan</i></p> <p><b>Section V Designing and Delivering Services to Optimize Patient Engagement 503</b></p> <p>26 Treatment Engagement: The Experience of Users of Health Services 505<br /><i>Dolly Sen</i></p> <p>27 Recovery from Ill Health from an Occupational Perspective 515<br /><i>Wendy Bryant and Maggie Winchcombe</i></p> <p>28 Achieving Patient Engagement Through Shared Decision‐making 531<br /><i>Paul Barr, Glyn Elwyn, and Isabelle Scholl</i></p> <p>29 Optimizing Service Delivery to Enhance Treatment Engagement 551<br /><i>Sharon Lawn</i></p> <p>30 Patient Engagement in Treatment in an Information Age 568<br /><i>Fiona Stevenson and Maureen Seguin</i></p> <p>31 Governing by Risk, or Why Interventions to Improve Health Fail 582<br /><i>Paul Crawshaw</i></p> <p>Afterword: Future Directions 597</p> <p>Index 602</p>

<p>Adherence to long-term therapies is perhaps one of the most important issues that deserves the attention of all stakeholders in the health care field, including doctors, nurses, pharmacists, all health care providers, but also the pharmaceutical industry, health authorities and payers. Everyone agrees that patient adherence, especially for those with chronic diseases, is far from optimal, with catastrophic consequences for the effectiveness of care, which has made more progress in the last 50 years than in the 50 centuries before.</p> <p>The originality of this book relies on the fact that it approaches the problem of adherence in a holistic way, going beyond the term adherence, which was itself already an advance over that of compliance. It proposes replacing it with a more general term, that of engagement. This concept reinforces the involvement of the patient, becoming a true agent in the management of his or her disease. In particular, it is necessary to distinguish between the different phases of this engagement, at the time of treatment initiation, implementation and, last but not least, persistence.</p> <p>This book will be of interest to all care providers. Its ambition is to clarify through theoretical models the mechanisms of patient engagement in treatment, so that practical approaches can be identified to improve it, giving both general indications and specific applications to different groups of patients. An entire section of the book is devoted to care in different contexts: adolescence, the elderly, vulnerable people, the effect of social deprivation cognitive deficits and mental illness. At a time when digital technology and artificial intelligence are transforming the practice of medicine, this book shows their promises and limitations with remarkable intelligence (Chapter 30). Inevitably, the new demands of patients to become agents of their treatment require the development of the concept of shared medical decision making and Chapter 28 devoted to it is especially brilliant. It is this sharing which really defines the concept of engagement, which makes it inseparable from patient education, which truly finds its full meaning in engagement. It is through this process that trust is generated, which is the condition for real patient engagement. It requires that care providers become aware of the human nature of patients, combining the greatness of complex thought with the presence of cognitive and emotional bias. This book therefore sets out the conditions for the real implementation of a person-centered medicine.<br />—<b>Professor Gérard Reach, Professor of Edocrinology and Metabolism, Paris 13 University & Head of the Endocrine Department, Avicenne Hospital, Bobigny, France</b></p>

<p><b>Andrew Hadler</b> is a Consultant Forensic Psychiatrist with Sussex Partnership NHS Foundation Trust, UK and Honorary Lecturer at Brighton and Sussex Medical School. <p><b>Stephen Sutton</b> is Professor of Behavioural Science and Head of the Behavioural Science Group at the Institute of Public Health, University of Cambridge, UK. <p><b>Lars Osterberg</b> is Associate Professor (Teaching) at Stanford University School of Medicine, USA, and a Staff Physician at the Veterans Administration Palo Alto Health Care System.

<p><b>Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: "Why don't patients take treatments that could save their lives?"</b> <p>"Hadler, Sutton and Osterberg's Handbook takes on the real world challenge of treatment engagement from patient, provider, and practice perspectives with evidence-based solutions. It is a must read for improving the reach, delivery, and utility of health care treatments, particularly those that necessitate chronic patient self-management."<br/> <b>—Judith Prochaska, PhD, MPH,</b> Associate Professor, Department of Medicine, Stanford University <p>This book will be of interest to all care providers. At a time when digital technology and artificial intelligence are transforming the practice of medicine, this book shows their promises and limitations with remarkable intelligence. It is through the process [of sharing] that trust is generated, which is the condition for real patient engagement. It requires that care providers become aware of the human nature of patients, combining the greatness of complex thought with the presence of cognitive and emotional bias. This book therefore sets out the conditions for the real implementation of a person-centered medicine."<br/> <b>—Gérard Reach, MD, FRCPEdin,</b> Emeritus Professor of Medicine, Paris 13 University, and author of <i>The Mental Mechanisms of Patient-Adherence to Long-Term Therapies, Mind and Care</i> <p><i>The Wiley Handbook of Healthcare Treatment Engagement</i> offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-reaching and fascinating field, describing a broad range of evidence-based approaches which stand to improve clinical services and treatment outcomes, as well as the experience of users of healthcare service and practitioners alike. <p>This comprehensive volume adopts an interdisciplinary approach to offer an understanding of the factors governing our healthcare systems and the motivations and behaviors of patients, clinicians and organizations. Presented in a user-friendly format for quick reference, the text first supports the reader's understanding by exploring background topics such as the considerable impact of sub-optimal treatment adherence on healthcare outcomes, before describing practical clinical approaches to promote engagement in treatment, including chapters referring to specific patient populations. The text recognizes the support which may be required throughout the depth of each healthcare organization to promote patient engagement, and in the final section of the book, describes approaches to inform the development of healthcare services with which patients will be more likely to seek to engage.

<p>"Adherence to long-term therapies is perhaps one of the most important issues that deserves the attention of all stakeholders in the health care field, including doctors, nurses, pharmacists, all health care providers, but also the pharmaceutical industry, health authorities and payers. Everyone agrees that patient adherence, especially for those with chronic diseases, is far from optimal, with catastrophic consequences for the effectiveness of care, which has made more progress in the last 50 years than in the 50 centuries before.</p> <p>The originality of this book relies on the fact that it approaches the problem of adherence in a holistic way, going beyond the term adherence, which was itself already an advance over that of compliance. It proposes replacing it with a more general term, that of engagement. This concept reinforces the involvement of the patient, becoming a true agent in the management of his or her disease. In particular, it is necessary to distinguish between the different phases of this engagement, at the time of treatment initiation, implementation and, last but not least, persistence."<br />—<b>Professor Gérard Reach, Professor of Edocrinology and Metabolism, Paris 13 University & Head of the Endocrine Department, Avicenne Hospital, Bobigny, France</b></p>

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